Redefining disability…and what it means for the church

Ben Conner QuoteEven though I am free of the demands and expectations of everyone, I have voluntarily become a servant to any and all in order to reach a wide range of people: religious, nonreligious, meticulous moralists, loose-living immoralists, the defeated, the demoralized—whoever. I didn’t take on their way of life. I kept my bearings in Christ—but I entered their world and tried to experience things from their point of view. I’ve become just about every sort of servant there is in my attempts to lead those I meet into a God-saved life. I did all this because of the Message. I didn’t just want to talk about it; I wanted to be in on it!

1 Corinthians 9:19-23 (MSG)

The apostle Paul was incredibly passionate about wanting to share the Gospel with everyone he encountered. He was willing to do whatever it took to tell people about Jesus…including repeat visits to cities where the people attempted to kill him. We’ll come back to Paul’s example later…

I came across an interesting article on the Forbes Magazine website last week illustrating a shift in the way many in society are understanding the concept of disability. The article is largely taken from an interview with Dan O’Connor of the Berman Institute of Bioethics at Johns Hopkins University following a U.S. Department of Justice ruling that a Massachusetts university is required under the Americans With Disabilities Act to provide gluten-free meals to students with celiac disease who have no choice in purchasing the university’s meal plan. Here are two quotes from Dr. O’Connor that help illustrate the paradigm shift in how some are viewing disability…and the opportunities and challenges the new thinking presents to those serving in the disability ministry movement.

“One school of thought,” he says, “is that it’s your body that’s disabled you. If you can’t walk and use a wheelchair, it’s your legs that disable you, for example. But the newer thinking is that it’s not your body that disables you, it’s the environment around you.” For example, an environment full of stairs is actually what disables a person in a wheelchair. “That’s a much more interesting way to look at disability,” he adds. “So the onus isn’t on the ‘disabled’ person, it’s on the environment and on all of us.”

On behalf of our team at Key Ministry, I’ve made the argument on many occasions that the greatest barrier to inclusion of kids with emotional, behavioral and developmental disorders (what we’ve referred to as “hidden disabilities”) and their families at church involves the challenges presented by the environments in which we do ministry. Some common examples would include…

  • The child with sensory processing issues expected to participate in high-energy children’s ministry large group worship with bright lights and loud music.
  • The child with combined type ADHD expected to sit still and demonstrate self-control for an extended period of time in uncomfortable clothes and seating through worship services with content designed for adults.
  • The self-conscious teen who experiences difficulty picking up on nonverbal social cues who becomes resistant to attending small groups in the homes of unfamiliar peers and adults.
  • The middle schooler with separation anxiety who misses out on all the overnight retreats and mission trips.

As more and more people in society (and the church) recognize the contributions our environments make to conditions our society recognizes as disabilities, we have an opportunity to rethink our paradigm of how we minister to kids and families with disabilities. We can ponder how we can create ministry environments where kids with “neurodiversity“…differences in how they process sensory stimulation as well as verbal and non-verbal language, differences in ability to self-regulate emotion and behavior, differences in how they perceive threat or risk…and their families can thrive as they learn about Jesus, come to faith in Him and grow in faith in Him.

This doesn’t mean we turn our back on the proven methods and strategies for supporting families impacted by disabilities. Our movement is incomplete without both the traditional and evolving service paradigms for “doing” inclusive disability ministry. In this way, we can avoid one of the challenges Dr. O’Connor identified for the disability community…

“What you may find is an interesting division between people ‘traditionally disabled’ – who are blind, or in wheelchairs, for instance, who’ve fought long and hard for these rights, and whose disabilities interact with them every day – and those who are ‘disabled in other, ‘newer’ ways. They may become vexed with people trying to get particular part of their life made easier. Who’s really disabled? The traditionally disabled may worry that political gains they’ve made will be left behind.”

It’s not an either-or for the church…it’s both. Just as the church has many members with unique gifts and talents and abilities, individual churches will have programs and environments that will be more appealing to some families than others. Allow me to share two general principles that would help us collectively as a movement to become like Paul in “becoming a servant to any and all”…

No church will be able to develop a special needs/disability ministry or create ministry environments that will be ideal for every child and every family with every imaginable disability.

Every church can and should be intentional about doing something to become more welcoming and inclusive to families of kids with disabilities.

Accomplishing this is not without overwhelming challenges. Every church has a contingent of people who are adamant about doing church “the way we’ve always done it.” Any attempt to change ministry environments will be met with resistance (think about how worked up folks get about the music at church!) and has to be done in a way that those environments continue to appeal to kids and families who are “neurotypical” and most importantly, our ministry environments need to fulfill their primary purpose… helping kids and parents to come to know Christ and to grow in Christ.

I’m encouraged that God is at work here…because we clearly can’t do this in our limited wisdom and strength. But we can look forward to God working through the circumstances to hasten the day when there will truly be a church for every child.

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Accessibility Summit 2013Our Key Ministry team will be hitting the road to be part of the 2013 Accessibility Summit, hosted by McLean Bible Church in suburban Washington D.C. on April 19th-20th. This year’s Summit features Emily Colson (daughter of Chuck) As an artist, author, and speaker, Emily is passionate about inspiring others to persevere through their challenges and appreciate life’s gifts. In her book Dancing with Max, she and her late father share the struggle and beauty of life with Max, Emily’s son with autism.

For more on our Key Ministry presentations, click here. For more information on the Summit and registration, click on the Summit logo to the right.

About Dr. G

Dr. Stephen Grcevich serves as President and Founder of Key Ministry, a non-profit organization providing free training, consultation, resources and support to help churches serve families of children with disabilities. Dr. Grcevich is a graduate of Northeastern Ohio Medical University (NEOMED), trained in General Psychiatry at the Cleveland Clinic Foundation and in Child and Adolescent Psychiatry at University Hospitals of Cleveland/Case Western Reserve University. He is a faculty member in Child and Adolescent Psychiatry at two medical schools, leads a group practice in suburban Cleveland (Family Center by the Falls), and continues to be involved in research evaluating the safety and effectiveness of medications prescribed to children for ADHD, anxiety and depression. He is a past recipient of the Exemplary Psychiatrist Award from the National Alliance on Mental Illness (NAMI). Dr. Grcevich was recently recognized by Sharecare as one of the top ten online influencers in children’s mental health. His blog for Key Ministry, www.church4everychild.org was ranked fourth among the top 100 children's ministry blogs in 2015 by Ministry to Children.
This entry was posted in Families, Hidden Disabilities, Inclusion, Key Ministry, Ministry Environments and tagged , , , , , , , , . Bookmark the permalink.

One Response to Redefining disability…and what it means for the church

  1. SNAPPIN' MINISTRIES says:

    Bravo, Steve! Excellent, excellent post!

    Like

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