Are parents of kids with ADHD stigmatized at church?

shutterstock_90358606_2Shannon Dingle had a wonderful post on perceptions of folks in the church about ADHD. I’d encourage you to read her post, because I’m challenged to express my opinions as eloquently as she did on her blog. I appreciate the comments left on her blog from a pastor (Carey) who gave voice to the thoughts and feelings Shannon was seeking to describe in her post.

Here are three specific quotes from Carey’s comments I’d like to respond to:

“However, as a Pastor, and one who is continually involved in family and marriage counseling, my concern is that some/many/alot (not sure the figure) of the ADHD diagnosis are not hitting the true need the child has – better parenting.”

“My concern is that kids who are mis-diagnosed with ADHD, when they really need better parenting at home are being “drugged” rather than what they really need… and nobody really benefits from that.”

“My comments are not aimed at those parents, so please understand that. I’m concerned about those who are quick to label their child with special needs as a way to side-step their Biblical responsibility as parents. Parenting is not easy, and many shirk it like they do other difficult things in life (conflict, work, etc.). Those children get drugs instead of loving discipline, and they are not served well by it. From my seat it seems all too common.”

Micah TickleThe reality is that within the church community, there are some diagnoses that are considered “legitimate” disabilities, autism being the condition getting the most attention at the moment. When we started Key Ministry, our primary reason for being was the firsthand experience of the founding members of our team with families of kids with “hidden disabilities” who stopped attending church because of the responses they experienced from people within the church. It didn’t seem to us that the established disability ministry organizations were attuned to the needs of families with children experiencing primary mental health conditions, presumably because they didn’t fit into the existing construct of “disability” or “special needs.”

Our “marching orders” are to make disciples of all nations…let’s say for the sake of discussion that all of Carey’s assumptions are correct. Given that 11% of all school-age kids in the U.S. have been “drugged” for their ADHD, representing more than 11% of families (because more than 11% of families have at least one child who has been prescribed medication for ADHD), how effective are we likely to be as church in reaching out to and connecting with those parents and building relationships with them that lead to meaningful life change?

Behavioral therapy is not a particularly effective treatment for kids with uncomplicated ADHD. The landmark study that folks in the field point to in examining this topic is the MTA study (Multimodal Treatment of ADHD), funded by the Federal Government and conducted in the mid 1990s. The premise of the study was to compare the effects of medication alone, an intensive course of behavioral and psychosocial treatment alone, the combination of the two treatment approaches and treatment readily available in the community in kids with uncomplicated ADHD, kids with ADHD and other disruptive behavior disorders (Oppositional Defiant Disorder, Conduct Disorder), kids with ADHD and internalizing disorders (primarily, anxiety) and kids with ADHD plus two or more comorbid conditions.

An overview of the study results is presented below.

Behavioral/psychosocial therapy was most helpful in situations in which kids had multiple comorbid conditions, along with kids with concomitant anxiety disorder. For kids with uncomplicated ADHD, medicine alone was clearly more effective than the behavioral therapy alone, and the benefits of behavioral/psychosocial treatment were seen only after the kids were also treated with medication. For what it’s worth, if there was a bias in how this study was designed, the bias was in favor of demonstrating the benefits of behavioral interventions. The cost to a parent looking to replicate the counseling, case management and classroom interventions used in the MTA would be well in excess of $30,000/year.

Is it possible that the parents themselves might have a disability that would negatively impact their ability to consistently implement more effective parenting strategies? Literally, the apple doesn’t fall far from the tree. Looking at the data below, can we safely assume that all parents of kids with ADHD are capable of implementing strategies that require great consistency in order to be effective?

A better question to ponder may be how we as the church can we help such parents more readily bear the burdens associated with their child’s condition? Would it make more sense to err on the side of grace in how we view families of kids with ADHD, at least until we know them well enough to feel we could walk in their shoes?

Where exactly is the evidence that large numbers of kids are inappropriately being treated with medication? The folks at the National Institute of Mental Health did a study looking at this very issue during the time when use of medication for ADHD was rapidly escalating. Here’s what they found. The situation may be different in Perry’s community.

Finally, much to the chagrin of the pharmaceutical industry, there aren’t large numbers of parents beating down the doors to get medication for their kids. Check out the slides below-one is from a study I presented around five years ago looking at information from a large pharmacy database. The average parent of a child with ADHD fills around 4 ½,  30-day prescriptions per year for medication. The average adult with ADHD fills around three prescriptions per year.

For the majority of patients I see with ADHD, especially those with comorbid conditions, the side effects of medication are often a problem. Parents don’t typically want to give medication to their kids unless they absolutely have to. I see more situations in which parents are ruining their relationships with their kids (and as a result, losing their ability to exercise meaningful influence during their child’s teen years) with all the nagging, badgering and consequencing many have to do in an effort to get them through school.

I’ve seen parents with messed up priorities, looking for quick fixes for problems they may have created for their kids by poor choices they’ve made stemming from spiritual poverty. In my experience, they’re clearly the exception as opposed to the norm when it comes to my families impacted by ADHD. But they too were created in the image of God, and they too (like us) are desperately in need of grace, forgiveness and a relationship with our Savior, Jesus Christ. If our goal is Kingdom-building, I think it’s far better to start with the attitude that we all far short. We should seek to let go of attitudes that present a potential obstacle to families connecting with their larger family in Christ.

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shutterstock_68372575Key Ministry is pleased to offer resources for church leaders and parents seeking to better understand how they might help kids and families impacted by ADHD. Included is a blog series by Key Ministry’s President (and ADHD researcher) Dr. Steve Grcevich, links to a lecture from Dr. Russell Barkley explaining key brain processes in ADHD, and an ADHD Resource Center developed by the American Academy of Child and Adolescent Psychiatry. Check it out today!

About Dr. G

Dr. Stephen Grcevich serves as President and Founder of Key Ministry, a non-profit organization providing free training, consultation, resources and support to help churches serve families of children with disabilities. Dr. Grcevich is a graduate of Northeastern Ohio Medical University (NEOMED), trained in General Psychiatry at the Cleveland Clinic Foundation and in Child and Adolescent Psychiatry at University Hospitals of Cleveland/Case Western Reserve University. He is a faculty member in Child and Adolescent Psychiatry at two medical schools, leads a group practice in suburban Cleveland (Family Center by the Falls), and continues to be involved in research evaluating the safety and effectiveness of medications prescribed to children for ADHD, anxiety and depression. He is a past recipient of the Exemplary Psychiatrist Award from the National Alliance on Mental Illness (NAMI). Dr. Grcevich was recently recognized by Sharecare as one of the top ten online influencers in children’s mental health. His blog for Key Ministry, www.church4everychild.org was ranked fourth among the top 100 children's ministry blogs in 2015 by Ministry to Children.
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3 Responses to Are parents of kids with ADHD stigmatized at church?

  1. Ann Holmes says:

    Moral and professional authority trump eloquence in this case! Thanks!

    Like

  2. Yes; thank you. My heart goes out to anyone in a church community who feels judged for not “doing their Biblical duty” as parents. Fortunately, that is not a kind of dialogue found in the Catholic Church community – here, I suppose, it is primarily thought that the kids are disruptive or “irritating” – at worst the parents are pitied as being “incapable”. To have the added burden of being judged as failing God – that takes the whole thing a step too far. That is the sort of judgement that sometimes drives parents to abuse children in their shame and frustration.

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  3. Pingback: Top 10 Tips To Help You Have A Healthy Realtionship With Your Child

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